It was a good weekend with the family. We had the 2nd annual Tyler's Hope Poker Run on Saturday and 70 motorcycles showed up. The kids all had a blst sitting on some of the motorcycles, listening to the band, and playing in the field. I particularly liked watching Luke eat ribs. The Mustangs baseball coaches(Tyler's team) contributed the food and cooked it for us.
Samnatha has been compalining of pain in her back. This really scares me because of all the symptoms that I see dystonia cause, the back issues are horrible. Sam's back pulls so much at times that it jolts her out of her seat. It is not very frequent right now but we are watching it closely.
Tyler and Samantha had botox injections last week and they seem to help a little now. Tyler has had the dystonia progress a little into his neck. He got some botox injected into his shoulder as well as his wrist last week. Sammy had injections in both of her lower legs. Sammy received 300 units of botox this timeand did not complain about the injections.
Tyler goes in to get programmed today at 2pm. Luke is still taking swim lessons. Sammy is getting very good at multipilcation tables. Michelle had to get glasses to read. Gator and Tebow (our labs) are terrorizing everyone right now.