Yesterday was unbelievable. I never would have guessed how much exposure and support would be generated from the article with CNN. I am not sure what time the video went on CNN.com Thursday morning but it was the lead report on the front page and I received many calls and emails before I knew it was up. We started to get the word out in the midmorning so many people were not able to see it until even today. Last night it was the third most emailed video on CNN and today we are #1. Dystonia was the fifth most searched word on the Google search yesterday.
The hits kept coming and it seems even more people watched it last night. My servers could not handle the traffic and our site quickly shut down. We were able to get a temporary page that many people used to donate. Thank you to everyone that has donated. We promise to use the donations wisely for a cure. I am extremely energized and think that we will do even bigger things now that we have national awareness. Several other opportunities have arisen for interviews and national exposure for Tyler’s Hope and more importantly, Dystonia. The word dystonia was the fifth most searched word on the Google search yesterday at one point.
Samantha, Luke and I went over to the Tyler’s Hope Center for total dystonia care this afternoon and met with our friend Mike that came up from Tampa to be seen in the clinic. Mike was able to meet Jen, the Tyler’s Hope center coordinator. It was great to get the kids together with someone that really understands his dystonia and can talk with them. I will be spending this weekend trying to answer emails and calls that have been coming in. The website will need some work and I plan on doing that as well. Look for updates to the Products section and a section that will provide a link for the DIPR Registry. Feel free to email me your contact information if you would like more information on the registry.
Luke and Samantha miss their big brother and can’t wait for him to get home tonight. Tyler hurt his arm in Washington DC and had to get it x-rayed. It was not broken. He hurt it trying to unload his wheelchair from the bus.