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May 18

Written by: Rick Staab
5/18/2009

The in-laws from Miami came into town to see Samantha's first communion. My father-in-law is Jewish so it was big to get him to the church for Samantha. We caught him trying to take the money out of the collection basket until we told him to put money into it. They are good people and always support the kids and us very much.

Samantha did great at her first communion. She looked beautiful in her dress. Samantha has had difficulties walking as she has progessed so she was in a wheelchair throughout the first communion. A friend of hers, Grace, helped push her chair and it was really nice. Samantha's aunt Barb drove down from Atlanta to support her as well. Samantha's godfather spent all day with her and was wonderful to the kids as always. Between getting her godfather back into church and getting my father-in-law into a church, I was looking around for some crazy excitement to start up. If you know either one of these guys you would understand.

I spent about 35 minutes last night stretching Samantha's foot which is getting tighter. It just so happens that the angle I have to turn her foot to stretch it tickles her often because I have to grab the bottom of her foot.

Tyler's left leg pulls up and he does not put any pressure on it. We have started to sit on his legs and straighten them so that his hamstrings get stretched out. He does not like it but it is good for his legs to keep some flexibility.

Luke is still Luke and does not slow down. He was very sweet to his big sis this weekend. Please don't let Luke catch anyone messing with his sister.

I recieved an encouraging email form Jeb Bush on Saturday and I feel very positive about spending money and finding a cure in the near future.

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