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Progressional Diary
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Progressional Diary
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May 12

Written by: Rick Staab
5/12/2009

A local family magazine is doing an article about the Tyler's Hope for a Dystonia Cure Foundation and were taking photos of the kids at a park this afternoon. While taking the photos, a lady named Misty from the Leadership Gainesville class came over to Samantha and asked her if she was Samantha Staab. Misty explained to her that she was familiar with the foundation and with how much love and kindness that Samantha had given Tyler while dealing with his dystonia. She said that Samantha was her hero and she admired her for her courage and strength. I was not there but I am recapping what Michelle told me happened. This was very big because Samantha hardly is recognized for her efforts and strength. That small act of kindness both helped my family and taught Samantha important things. Thank you Misty!

Samantha is having a harder time walking lately. Her difficulties are most likely the natural progression of dystonia. She continues to do well in school and is some kind of grand wizard at board games like CLUE. She kicks our butts all the time.

Tyler is also doing well in school and works very hard at keeping up with his advanced classes. Michelle works tirelessly with the kids on homework and driving them to different events. Tyler had a hard time eating today so he is getting an extra nutrition shake tonight.

Luke continues to be a maniac. He looks as if he is growing which is good and bad.

I am excited about obtaining another new intern for the foundation. Brooke Watson is going to be great for the foundation. Keep a look out for upcoming events such as the Margaritaville evening fundraiser in Orlando at the end of August and the Poker Run motorcycle ride in June. Don't forget the golf tournament August 14th and 15th.

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