Tyler started back to OT and PT. OT will help with his left wrist and they will redo his brace for that hand to wear at night. PT is to retrain his walking. They will work on strength training in his legs. He will do some weights and treadmill work. The PT is concerned about his back and neck. His neck and spine turn some now and he is concerned that since he is still growing that it will grow that way. He is going to show us some stretches to do with Tyler to help that. Tyler is able to ride his scooter some now and walk short distances. He is pretty excited about being able to do these things.
Samantha started OT for her right hand. She switched to left hand writing because the right hand is very difficult to use. She writes neat but it takes her forever to write something. They will work with her on stretches and some games to help her use the right hand more. IF she continues on this path with her right arm Dr. Okun suggested Botoxing that arm in March when she goes back for botox on her feet. She has also started PT for her feet. Her left foot is worse and the right foot is progressing. They are going to do some serial casting on both feet. This will be an ongoing process until she can not tolerate or until they get the results that they need which hopefully will be a neutral position of the foot. This will go hand and hand with the botox. They will use a cast similar to plaster casts. This particular material can be cut using casting scissors so the kids like it better due to not having to have it sawn off. They don’t like the noise. The casts will be from the toes to below the knees. She is able to pick her color and have people sign them. She will get this done this Tuesday and every Tuesday they will remove the cast, set the foot back to a neutral and do it again. She will be able to walk on these casts with special shoes that they provide. We are unsure if she will be physically able to walk and will wait and see. She can not get these cast wet either so bathing will be hard….we will keep you posted.
Samantha’s birthday is January 29th and she is very excited about turning 8. We are going to have a slumber party for her and 9 girls….yes we are crazy.
Luke is doing great. We are taking him for a haircut this weekend and he wants it cut like Batman.
Michelle and I met with the school in our IEP meeting and she will soon get a fulltime aid. The school uses little chairs and they have a little chair with wheels that she can sit in and move around while she is at the school which wil be much better than her current method of crawling.
Samantha(Sammy) and I had date night last night and went for dinner. It was a lot of fun and we plan on doing it more often. One of the things we did in the past that she always talks about is a Father/Daughter dance. Since she cannot dance anymore or it is difficult to dance, we will do some other special things together.
Michelle always does special things with the kids and is a saint, never complaining and doing more than anyone I know. She also puts up with me. The teachers at the IEP meeting were all saying how saintly she is because she is soo involved and helps with lots of school functions and projects.