I have been very proud of Tyler for his hard work lately. Tyler has been reading a book outside of his normal class work. This has been difficult for him but I try to impress upon him how important reading is. Last weekend the Mustangs (Ty’s baseball team) had a tournament down in Leesburg Florida. On Saturday we went for the first game that they lost to the state champs 3-2 with our bases loaded. Tyler got to call the coin toss and he won calling heads. They won their next game 7-6 but Tyler had to come back with us to Gainesville for Samantha’s appointment. We only have one vehicle that will carry a wheelchair so they either need to go together to places right now or one kid will have to stay in one spot because they won’t be able to take their chair. My car doesn’t fit a chair so I guess I will need to spend more money on a gas guzzler to be able to transport them. I say this only so that people realize what is needed to take care of two handicapped kids. When you are not faced with it every day, you don’t realize the little things. He has been complaining about some neck and back pain. I am hoping this is just growth and not more dystonia symptoms. Tyler’s progressed for three or four years now but most kids progress rapidly for five years before reaching a plateau with their symptoms. I hope he has reached his plateau but every day I watch for new things.
Samantha has done well with her cast this past week. They are going to make some adjustments to the cast and possibly put the other cast on her right foot this week. We have been able to play some games like UNO and Chess. She keeps winning in UNO so I owe her back messages.
Luke is interested in basketball right now and has been shooting on our goal in the back yard. The goal is lowered for him. It was déjà vu when Michelle called me and said I need to show him how to shoot properly. I am always a little concerned to get them involved in basketball or other sports. Showing Tyler how to shoot a basketball was how we first learned of his dystonia. I pray Luke doesn’t get it and have nightmare daydreams about Luke’s arm not working correctly when I show him. For now, he is good and still a CRAZY four year old.