Jun
10
Written by:
Rick Staab
6/10/2009
This week Michelle and Tyler went on their trip to Washington DC with Tyler's class for the annual safety patrol trip. I am not sure who was more excited about the trip, Michelle or Tyler. Tyler was able to take his electric wheelchair on the bus. Michelle said they walked many miles the first day so it is very good that the school was able to work out a handicap accessible bus. The bus driver has been very good to Tyler. Having his chair is essential for him to be able to keep up but it would have been worse with his dystonia acting up due to fatigue. The fatigue comes from lack of sleep. They did not sleep much on the 16 hours bus trip and I don't think Michelle is getting too much sleep now.
I have been enjoying spending time with Samantha and Luke by myself. We have been swimming a lot and last night we went to Yamatos for dinner. We saw Tim Tebow there last night. For those of you who do not follow football, Tebow is most likely going to be considered historically as the best college player ever but the thing that is most inspiring is how he motivates others by being such a good/caring person. Tebow is a real role model. Samantha is not a small girl so it is much more difficult for me to pick her up than it is to pick up Tyler. Her left foot is very turned in right now but she is due for more botox in a couple of weeks. We play games while swimming but it is getting more obvious the difficulties she has with her legs and arms when she tries to swim. She loves to swim but you can see how hard it is to propel yourself without the ability to control your leg movements and even raise your arms over your head to swim. She has been killing me in games like UNO.
On Friday we will be meeting another friend and dystonia sufferer when he comes to town for his appointment. We look forward to seeing everyone when they come to The University of Florida for care. We have met many new friends and we help each other out in many ways. We hope to get together with our friends in Chicago, New York, Boston, California, and all over when they come to town. We appreciate the support. The kids are even better to see their friendships grow and their support of each other. Our house is open to anyone that comes to UF so take advantage of it.
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