This weekend is the Garden Party fund raiser in Raleigh held in honor of Samantha. Samantha was excited because she and Michelle were able to fly up for the event. It will be a great girl’s get-a-way.
Michelle and Samantha were concerned with how they were going to get around in North Carolina since Samantha needs a wheelchair most of the time now. They called the airlines and were told they could ship the chair through or even leave it planeside as they took their seats. Things never go as smoothly as people say they will. Their flight took them through Atlanta with a two hour layover. They sent pictures of the two of them making faces and playing around so I was happy they were having fun. They asked the check in desk if they could preboard and go to their seat first so that Samantha would not have as much difficulty going down the aisles as one of the last on the plane. They were told that would be fine but when they tried to board the plane they were told they had to wait for their zone to be called. Sometimes God works in mysterious ways as is evident simply by the presence of this blog and what it stands for but in this case, I think it was a good thing that I was not there to cause problems. It is embarrassing enough to deal with some of the symptoms of dystonia and the stares but it is crazy to me when people don’t allow simply things that would make life easier. I am rambling and I want to stay focused on what occurred because although it is comical, it is very frustrating and a lot of people that don't deal with handicapped kids see what occurs. They finally got situated on their flight and arrived in Raleigh shortly after that. Once they touched down and went to get off of the plane they were let know that the wheelchair was left in Atlanta. As I have said before, my wife is a saint and has much more patience then myself so they just gave them the address to where they are staying and were told that the chair would be delivered sometime tonight. It gets a little better. They gather their bags and make their way to the exit but the elevator was broken and they needed to meet their ride downstairs. They finally made it, settled in, and are having a great time.
I am at home with my two boys for the weekend by ourselves. I came home a little early from work today and we all went to see the movie UP then came home for dinner. If I do not update the diary blog, it is probably because Luke and Tyler have me tied up and I will need to wait for Michelle to get home to be untied.
I just put Tyler in the downstairs room for the night and hooked up the feeding pump for him. He was having a difficult time talking and I could hear his teeth grind as he labored through eating a sandwich for dinner. I tried to make him a three egg omelet with cheese and ham but I snuck in some fish oil and he caught me. He did not like the orange "funky" taste of the fish oil so he did not eat the omelet. Oh well, I tried.