Michelle and I went to Chapel Hill for the Tyler's Hope for s Dystonia Cure wine tasting event. We saw many of our friends and had a good weekend by ourselves. My mother-in-law watched the kids so we could go up this weekend. I cannot stress the importance of good friends when things are tough. Our friends and supporters are very encouraging and it amazes me how supportive they continue to be. The event was a success because we not only raised money for research but we also were able to expose new people and a new community to Dystonia and Tyler's Hope.
Tyler is doing well and several people have commented how he is growing up. Tyler continues to be able to walk more than what he used to be able to and his features make him look like he is getting older. I don't like it but it is also fun to watch him grow. I would like to find the cure while he is still in school.
Samantha is progressing and we are contemplating starting her on Baclofen. Her legs and ankles are really bad and she is looking twisted like Tyler when she walks. Samantha gets her brace this week for her leg and we are hoping this will help her.
Luke is Luke and has been having fun with his best buddy heather lately. He is always good for a new statement that keeps Michelle and I in stiches.